The Cutest Boy

How does that phrase go? "There is nothing that brings a smile to a man's face like a full belly". I must say I witnessed one of the cutest smiles ever tonight. Tammy and I were feeding Declan his monstrous 9cc's (to supplement his feeding tube) That volume is usually enough to tucker him out.  He had finished and had that drowsy look on his face. I sang him a song and as soon as I finished he cracked the cutest baby smile ever! The smile flashed a couple of times and Tammy and I were both grinning ear to ear in response. We couldn't help but look at his cuteness in admiration - it was definitely one of those "Simba" moments for those Lion King fans out there.
We have been feeling very fortunate today. Declan was back. He had no seizures today, and we think we have the correct medication for him. (Although he will continue to be monitored witth an EEG to be sure about it.) The surgeon removed his pacemaker leads that had remained as a precautionary measure. He also removed the tube that went straight into his atrium in his heart.  The surgeon arrived to our room with his surgical tools and glasses in hand, "as a precautionary measure" he said. In very rare instances, it could bleed badly and he would have to immediately open up his chest again and stich up the bleeding - bedside. Just what I needed to hear. As the surgeon ever so slowly pulled the tubing out, Tammy helped keep Declan calm and I kept watching for Tammy to faint. But the procedure was fairly quick and Declan's bleeding was quick to stop. So 3 lines were removed from his body: 2 pacer lines: check, 1 RA line: check.  I feel as if each day I am winning Declan back, one piece at a time.