10:00PM Today was full of baby steps. The day was completely different from yesterday After having a very steady night, the doctors cleared Declan to have various items removed from him. The tubes for his chest drain and stomach drain were removed, among a few other items. He also had his catheter removed so we are all clear for diapers! Later this afternoon he had a CPAP trial where they take him off of his breathing machine to see how he would respond. He passed and tonight they removed his breathing tube down his throat. A few doctors and nurses gathered in the room and they readied the oxygen, just in case he didn't respond well. Normally, his oxygen saturation levels are in the mid to high 80's. As they removed the tube I watched the monitor fall to the low 80's, then the 70's. My hands started sweating as the numbers fell into the 60's. But then he came back up into the low 80's. He still is slightly oxygen assisted, but as you can see he is much happier! He is able to cry now and it is music to my ears! (For now.) His tube feeding has resumed as well. Although yesterday was a step back, today Declan marched forward!
11:30 PM Can I take back what I just said? I was literally about to hit the post button and his alarms went off because his heart rate began spiking again to the 270's. Another SVT episode. The doctors were able to control it, but it was another room full of doctors, another round of sweaty palms, and another round of anxiety. Here comes another sleepless night.
Thank you for the updates. It is a great relief to read his journey and know how his days and yours are going.
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