Today we were introduced to the "Journey Board". The board consists of about 35 things we have to have completed, or "mastered" in order to leave the hospital. The requirements range from such items as identifying your pediatrician (which we thankfully have the best) to being able to administer his various medications through his feeding tubes. It also includes requirements such as testing for oxygen saturation and understanding red flags that would require a return trip to the hospital. It's a bit overwhelming to think about everything we have to be comfortable with; but we have a great nursing staff that can teach us. I keep joking with Tammy that we should be awarded an honorary nursing degree by the time we leave the hospital. In the next few days they will be showing us the ropes and teaching us the skills we will need.
Overall Declan continues to do better. Still working on getting him to stop throwing up the formula, but he's keeping more down today. Weight gain was minimal, but positive at least. Looking forward to completing the chart, one box at a time and getting our little fighter out of here! Thanks again for all the thoughts and prayers!
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