I can't believe how long its been since I've updated so I apologize We returned from the hospital last Sunday afternoon. Declan had been keeping most of his feeds down and the doctors felt comfortable with us leaving. Declan has been doing pretty good keeping everything down at home as well. We were working on getting his feeds up to 75cc's per 3 hours. But then the other day he started throwing up again. As a result, the doctors have backed down to 60 cc's for a couple of days to see how he does. They seem to be okay with it as he has moderate weight gain. But we hope he can handle the feeds so we can start to ramp him back up. His weight is at 4.27kg. (For all his charting we have to do kilograms). His weight today was slightly down, but the overall trend is positive. Today, when Tammy realized the number was less then yesterday, she said, "We'll just weigh him a bit later and maybe it will be a bit more." I replied, "You cant just weigh him 5 times a day and pick the best number". Tammy's reply: "Well clearly you haven't been on many diets!"
I think the biggest adjustment is just trying to see how this all fits into everyday life. It is so difficult having to monitor Declan so closely, all the time. It's both mentally exhausting and physically draining. The constant feeding, then keeping him still so he doesn't spit up the feed, with a short break before doing it all over again is taxing. Then to top it off, we try to put in time with the girls so they don't feel neglected. The process makes for long evenings and tiresome nights. We have started switching feeds and that has helped and we've been given the green light to skip the 3am feed. Last night was our first night without that feed and it felt great. We've had Tammy's parents at our house and we've now swapped out to my parents here. We are grateful for all the help, prayers, and little acts of kindness. Thank you all!.
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