Yesterday, Declan spent the day visiting the cardiologist and having an echo cardiogram. The doctors were pleased with the way things looked. Nothing was present that shouldn't be - his heart was making all the right noises. The cardiologists were happy with his progress as well. They were excited about his weight gain as hit 10 lbs even! The concern we have is his lack of bottle feeding. Prior to leaving the hospital he would take close to 1/2 an ounce. Since then, the amount he has taken orally has slowly decreased - now down less than 1/5 an ounce. The doctors were not as concerned as they are more focused on his weight gain. We have therapists coming this week, so perhaps they can crack the code to Declan's lack of bottle feeding. Luckily, he has the feeding tube to make up the difference.
We are so blessed that he has been relatively healthy. His color is good, the scar on his stomach has been healing, his heart sounds good, and he is slowly gaining weight. We are doing our best to adapt to our lack of sleep, and getting more comfortable with replacing his feeding tube (he threw up the tube out of his mouth 3 times this week.) Cambria is learning :"not to touch" and I love to watch her walk up to Declan and say, "baby, shhhh" and hold her finger to her closed lips.
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